Emma Macey, group account director at Atomic 212’s Melbourne office and her family have launched a Gofundme page in order to raise funds to take her 10-year-old daughter, Bella overseas to receive specialist treatment for complex regional pain syndrome (CRPS).
CRPS is a rare neurological dysfunction of the central nervous system, a disease for which there is unfortunately no explanation.
After working closely with the Royal Children’s Hospital, Emma and her family have exhausted all treatment options in Australia and as a result, are now looking to take her to a specialist CRPS clinic overseas for intensive treatments.
Emma Macey shared on LinkedIn that Bella’s life changed overnight.
“From a small infection in her foot that could be very common, for no rhyme or reason this turned into CRPS for Bella,” she said. “A cruel and painful disease for which there is no explanation.
“Working closely with the Royal Children’s Hospital, we have exhausted all the treatment options available here. After connecting with other families and speaking to many specialists here in Australia, we feel that taking Bella to a specialist CRPS clinic overseas that can provide a more intensive treatment where she will be with several other children fighting this disease, we think of it like a team sport supporting each other.
“The Spero Clinic, located in the USA , is at the forefront of treating CRPS. Their dedicated team of specialists utilizes innovative therapies, including physical therapy, and neurostimulation techniques, which have shown promising results in relieving pain and restoring function for CRPS patients. Through connections with parents who have overcome this with their children or are receiving treatment at Spero at the moment, we believe that the Spero Clinic holds the key to giving her back the life she deserves, but the cost of the treatment is substantial, and it’s beyond our means to cover it on our own.
“Please donate if you can, any amount no matter how small will help us get Bella the treatment she so urgently needs.”
The link to Bella’s Gofundme page can be found here.